Parkinson's Virtual Good Start Program

Wednesdays, October 19 & 26, 2022

The Parkinson’s Gspecialists ood Start Program is a two-part series presented virtually by a team of Parkinson’s disease from the Center for Neurorehabilitation, Sargent College at Boston University and the APDA Center for Advanced Research and APDA Information & Referral Center at Boston University Medical Center.

There is no cost for this program. This program is designed for individuals diagnosed with PD within the past three years, and will be held via Zoom.

Dates & Times: Wednesdays, October 19 & 26, 2022; 6 - 8 PM

Location: At Home via Zoom

Register: Fill out a registration online

Questions?: Contact APDA MA at apdama@apdaparkinson.org

SARATOGA PARKINSON’S SUPPORT GROUP OCTOBER 18

***PLEASE NOTE***  Live Meeting on TUESDAY, October 18, 2022 at 1PM for October only

Topic: Cay Anderson-Hanley, Ph.D - interactive Physical and Cognitive Exercise System

This will be an interactive meeting, you can sign-up for additional testing from 12:15 - 12:45 with students from Union College. Just e-mail Marie at softballmom300@yahoo.com to sign-up. See below for additional information!

***New Venue*** Saratoga Public Library, 49 Henry Street, Saratoga Springs, NY 12866

Dutcher Community Room - main floor, south end of building closest to parking lot. Follow the hallway towards the EMERGENCY EXIT and there will be a hanging sign on the right to denote the room entrance.

Questions or information contact:

Kevin McCullough saratoga.parkinsons@gmail.com (518) 222-4247

Marie Thorne softballmom300@yahoo.com (518) 810-8483

Moving our bodies is good for our health, especially for the brain! What about combining mental exercise with physical exercise? Some research suggests there may be greater benefit for the extra effort. Come learn about and/or participate in some on-going research to see if combined exercise such as novel and playful "neuro-exergaming" might be useful in addressing cognitive challenges. A NIH-funded clinical trial is underway for those with mild cognitive impairment to push back against Alzheimer's disease and related disorders. A team from Union College, Albany Med, Boston, and California are working to adapt the tablet-based pedal-n-play interactive Physical and Cognitive Exercise System (iPACES) to see how it might also be useful in Parkinson's Disease. Those interested in a more interactive experience can sign up to meet with a student from the team to help them practice their clinical research skill (12:15-12:45 for a brief survey and tests of thinking), to be followed by a presentation by Professor Cay Anderson-Hanley @ 1pm. There will also be opportunity as well for those interested to pedal-n-play the iPACES neuro-exergame. For more information or a preview check out: www.myipaces.org or email the professor at: andersoc@union.edu.

TUESDAY, October 18, 2022 - SARATOGA PARKINSON’S SUPPORT GROUP

***PLEASE NOTE***  Live Meeting on TUESDAY, October 18, 2022 at 1PM for October only

Topic: Cay Anderson-Hanley, Ph.D - interactive Physical and Cognitive Exercise System

This will be an interactive meeting, you can sign-up for additional testing from 12:15 - 12:45 with students from Union College. Just e-mail Marie at softballmom300@yahoo.com to sign-up. See below for additional information!

***New Venue***

 Saratoga Public Library, 

49 Henry Street, 

Saratoga Springs, NY 12866

Dutcher Community Room - main floor, south end of building closest to parking lot. Follow the hallway towards the EMERGENCY EXIT and there will be a hanging sign on the right to denote the room entrance.

Questions or information contact:

Kevin McCullough saratoga.parkinsons@gmail.com (518) 222-4247

Marie Thorne softballmom300@yahoo.com (518) 810-8483

Moving our bodies is good for our health, especially for the brain! What about combining mental exercise with physical exercise? Some research suggests there may be greater benefit for the extra effort. Come learn about and/or participate in some on-going research to see if combined exercise such as novel and playful "neuro-exergaming" might be useful in addressing cognitive challenges. A NIH-funded clinical trial is underway for those with mild cognitive impairment to push back against Alzheimer's disease and related disorders. A team from Union College, Albany Med, Boston, and California are working to adapt the tablet-based pedal-n-play interactive Physical and Cognitive Exercise System (iPACES) to see how it might also be useful in Parkinson's Disease. Those interested in a more interactive experience can sign up to meet with a student from the team to help them practice their clinical research skill (12:15-12:45 for a brief survey and tests of thinking), to be followed by a presentation by Professor Cay Anderson-Hanley @ 1pm. There will also be opportunity as well for those interested to pedal-n-play the iPACES neuro-exergame. For more information or a preview check out: www.myipaces.org or email the professor at: andersoc@union.edu.

Please note: Before the October's Meeting on Tuesday, October 18th, there will be an interactive portion at 12:15 - 12:45 for "neuro-exercising".  Just e-mail Marie at softballmom300@yahoo.com to sign-up.

The presentation by Cay Anderson-Hanley, PhD follows.

APDA: Have you ever found yourself stressed about seeing your neurologist? Does it seem like as soon as you sit down, it's time to leave? Have you left the neurologist realizing that you hadn't discussed the issues that you wanted to?

Katelyn Bird, MD, Movement Disorder Specialist and Assistant Professor of Neurology at Boston University Medical Campus, will share tips about how to best prepare for a neurology appointment. The presentation will include strategies for managing stress before the appointment, getting set up once you get to the clinic, and being strategic during your appointment so that you can get the most out of each visit.

Date & Time: Tuesday, September 20, 2022; 1 PM ET

Location: At home via Zoom

Saratoga County

SARATOGA PARKINSON’S SUPPORT GROUP SEPTEMBER

Live Meeting on September 19, 2022 at 1PM

Topic: Funding Topics for Long Term Care - Renee Birnbaum, CSA

***New Venue*** Saratoga Public Library, 49 Henry Street, Saratoga Springs, NY 12866

Dutcher Community Room - main floor, south end of building closest to parking lot. Follow the hallway towards the EMERGENCY EXIT and there will be a hanging sign on the right to denote the room entrance.

Questions or information contact:

Kevin McCullough saratoga.parkinsons@gmail.com (518) 222-4247

Marie Thorne softballmom300@yahoo.com (518) 810-8483

Choice Connections NY-Funding options for long term care

• Home care and Assisted Living:criteria and eligibility

• Veterans Benefits: disability and aid and attendance pension

• Long Term Care Insurance: daily allowance and elimination period

• Community Medicaid

• Nursing Home Medicaid

• Choice Connections: who we are and services we provide

• Community Medicaid Update:

Medicaid changes

• “What is sure is that there is no lookback as of yet.  Once it begins it will go back to 10/1/20 for Community Medicaid”

• Every month after the new start date  ie: September 2022 the look back period will increase by a month until a 30 month lookback has been reached

• Medicaid programs offered: NHTD, TBI Waiver and Managed Long term care

• Medicaid Assisted Living Program

Date: Tuesday, September 13, 2022
Time: 11AM - 12PM EDT
Guest researcher: Simon Stott, PhD
Topic: Drug repurposing for PD - does it work?

Blog: Drug repurposing for PD - does it work?

Dr. Stott is the Director of Research at Cure Parkinson's. The organization is an international supporter of both lab- and clinic-based research on disease modification in Parkinson's. Originally from New Zealand, Simon has over 15 years of experience in the field of Parkinson's research - in both the academic and biotech industry sector. He has been involved in lab-based research as well as clinical studies, with a number of scientific publications. He also maintains the 'Science of Parkinson's' website, which attempts to explain in plain English the research currently being conducted on Parkinson's.

Register here -> https://web.cvent.com/survey/48deaee0-1c92-4d26-9892-6fdc99e4187e/welcome

During The Victory Summit Event: Sleep and Parkinson’s, we will explore neurodegeneration, light therapy, different types of sleep-related issues, cognition, mood, exercise, and how they all impact a person living with Parkinson’s. These sessions will not only be informative, but they will also inspire you to take action to improve your quality of life and manage this complicated symptom of Parkinson’s.