This form describes a research study that is being conducted by Dr. Chad Heatwole, MD, MS-CI from the
University of Rochester Center for Health + Technology (CHeT).
The purpose of this study is to determine the ability of the Parkinson’s Disease-Health Index
(PD-HI) survey to measure patient-relevant changes in Parkinson’s disease (PD) symptoms over time.
The PD-HI survey was designed to assess the quality-of-life of patients with PD. This study will further
describe how PD symptoms progress over the course of two years.
If you decide to take part in this study, you will be asked to complete an online survey assessment five
times over the course of two years. These assessments will include demographics questions and various
health-related surveys that will ask about the PD symptoms that you experience. The assessments will be
taken at baseline, 6 months, 12 months, 18 months, and 24 months. Each assessment may take up to 40
minutes to complete and will be sent to you via email.