"Parkinson's disease progresses over time, often taking years before symptoms appear. Because it develops gradually, most people have many years of productive living after being diagnosed."
- National Parkinson Foundation -
Apathy and PD
One of the most challenging and puzzling non-motor symptoms of Parkinson’s disease (PD) is apathy. Apathy is defined as a feeling of indifference or a general lack of interest or motivation in activities. People with PD may feel that they have lost their “get up and go”, and can’t muster enthusiasm for anything – even things they once engaged in and enjoyed.
Care partner Resources
As a Parkinson’s care partner, you are an essential member of your person’s medical and care teams. While most care partners are spouses, children, siblings, and parents, even friends can be part of the care team. Your role as a Parkinson’s care partner will evolve over the years; therefore, we want to offer you resources and action plans to help YOU live well while also providing the best care possible for your loved one.
Davis Phinney Foundation Every Victory Counts® manual
The Every Victory Counts® manual broke new ground as the only resource of its kind, devoted solely to the principle of proactive self-care and a holistic approach to managing Parkinson’s. In subsequent editions, it has gained international recognition as a superb and comprehensive resource for changing the way people live with Parkinson’s. Now in its sixth edition, the manual is the cornerstone of our new Every Victory Counts suite of resources, a robust collection of printed and digital manuals (including a new Every Victory Counts Manual for Care Partners) that embrace the Davis Phinney Foundation’s philosophy of taking action to improve your quality of life with Parkinson’s.
Diet and Nutrition
"While there is no prescription for a PD-specific diet, to maintain overall good health most people living with Parkinson’s disease should eat a variety of whole grains, vegetables, fruits, milk and dairy products, and protein-rich foods such as meat and beans. Also consider including nuts, olive oil, fish and eggs to your diet, for their beneficial fats." - - parkinson.org
Dyskinesia is uncontrolled, involuntary movement that may occur with long-term levodopa use and longer time with Parkinson's. Not everyone will develop this complication, and the experience of dyskinesia varies. New and emerging treatments aim to help avoid dyskinesia.
If you’re living on your own with PD, Flying Solo is for you. Meet online with a group of people who want to talk about the unique issues and needs that living alone with Parkinson’s and other movement disorders creates.
Medications for PD
Most people with Parkinson’s begin a course of treatments to help manage symptoms. Treatments often include a unique combination of medications and surgical therapies as well as exercise and other complementary therapies like acupuncture, speech and language therapy, physical therapy and occupational therapy. - Davis Phinney Foundation
“You have Parkinson’s.” An estimated 60,000 people in the US hear these three words each year, setting them on a journey that, for so many, is filled with more questions than answers, especially in the beginning. " - Davis Phinney Foundation
Parkinson's Foundation - Plan for the next hospital stay.
Get Your Aware in Care Kit
The Aware in Care kit includes tools and information that will help people with Parkinson's and their families plan for the next hospital stay.
Pets and PD
Service dogs may be able to make life easier for people living with Parkinson’s disease.
Prescription drug assistance programs
You may find it necessary to get help paying for prescriptions even after enrolling in Medicare Drug Coverage (Part D). For example, you may reach the annual spending limit and enter what is called the coverage gap. Here are some tips to consider if you think you might need to get help with the costs of prescription drug coverage.
Sleep and PD
The brain changes that are part of PD can also cause sleep difficulties and some people have problems sleeping even before movement symptoms develop and PD is diagnosed.
Some PD medications can disrupt sleep. Others make people sleepy during the day. Not surprisingly, sleep-related symptoms are reported by more than 75 percent of people with PD.
Surgery and PD
People with Parkinson’s disease (PD) sometimes face procedures or surgeries due to other medical conditions not related to PD. These could be relatively simple procedures such as a colonoscopy or endoscopy, common surgeries such as cataract removal, gall bladder removal or hernia repair, or more complex surgeries such as open-heart surgery or transplant surgery.
The SteadyMouse Project
SteadyMouse is assistive software, designed from the ground up to be your fierce ally against Essential Tremor and the variants that often accompany Parkinson's disease and Multiple Sclerosis.
What is Parkinson's?
There is no simple way to deal with the life-changing event of a Parkinson’s diagnosis. The good news: Most people find acceptance and quality of life after the initial adjustment period.
Young Onset Parkinson's Disease (YOPD)
Young onset Parkinson's
Young Onset Parkinson’s disease (YOPD) occurs in people younger than 50 years of age. Most people with idiopathic, or typical, PD develop symptoms at 50 years of age or older.
YOPD affects about four percent of the one million people with PD in the United States. Symptoms are similar to late onset PD but it is important to understand the challenges YOPD individuals often face at a financial, family and employment levels.