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Albany County Department for Aging

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Trusted Organization, Nutrition, Support

Older residents who are home-bound and in need of day-to-day assistance, including home delivered meals, should contact Albany County- NY Connects at (518) 447-7177

Deb Riitano, Commissioner 162 Washington Avenue Albany, NY 12210 Phone (518) 447-7198

Albany Guardian Society

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Housing, Transportation, Nutrition

Senior Housing Directory, Senior Transportation Directory

The mission of Albany Guardian Society is to improve the lives of seniors in the Capital Region, their families and their caregivers, through information, education, research, and collaboration. Albany Guardian Society offers 150 classes on age related topics throughout the year. Includes directories for: Senior Housing Options Directory Deciding on one’s next home can be a stressful and complicated experience, especially for seniors. The good news is there are a lot of excellent senior housing options to choose from. Senior Transportation Options Directory Transportation is a vital link for seniors to remain active and independent in their community. New in 2021, the “Transportation Options for Senior Adults in the Capital Region” directory provides the name, contact information, specific services provided, hours of service, accommodations, and fees for the senior transportation options in Albany, Rensselaer, Saratoga, and Schenectady counties. https://albanyguardiansociety.org/

Albany Medical Center - Occupational and Physical Therapy Center

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Physical Therapy, Medical Professionals

99 Delaware Ave. in Delmar, NY
(518) 262-9700

Maximizing Recovery Physical Medicine and Rehabilitation is vital to the care of patients who are recovering from an accident, stroke, or neurological disorder, or who are learning to live with a chronic disease. Our neurologists, neurosurgeons, and physiatrists work together to bring patients back to maximum function through the most advanced technology. Care Throughout the Capital Region This page features information about rehabilitation services at Albany Medical Center. To schedule an appointment with Albany Medical Center, call 518-262-5633. Learn more about rehabilitation services at Columbia Memorial Health, Glens Falls Hospital, and Saratoga Hospital. Learn more about Albany Med Health System member Visiting Nurses. All locations in the System can be found in the Get Care section of this page.

Alzheimer’s Association, caregiver and referral services

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Memory, Care Partners

Serving needs of those dealing with Parkinson’s and other conditions, not restricted to Alzheimer’s
The Alzheimer’s Association 24/7 Helpline (800.272.3900) is available around the clock, 365 days a year. Through this free service, specialists and master’s-level clinicians offer confidential support and information to people living with dementia, caregivers, families and the public.

Shannon Lawler, (518) 867-4999 ext. 306.

American Parkinson Disease Association (APDA)

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Trusted Organization

The American Parkinson Disease Association (APDA) is the largest grassroots network dedicated to fighting Parkinson’s disease (PD) and works tirelessly to help the approximately one million with PD in the United States live life to the fullest in the face of this chronic, neurological disorder.

The American Parkinson Disease Association (APDA) is the largest grassroots network dedicated to fighting Parkinson’s disease (PD) and works tirelessly to help the approximately one million with PD in the United States live life to the fullest in the face of this chronic, neurological disorder.

Apathy and PD

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Symptoms

One of the most challenging and puzzling non-motor symptoms of Parkinson’s disease (PD) is apathy. Apathy is defined as a feeling of indifference or a general lack of interest or motivation in activities. People with PD may feel that they have lost their “get up and go”, and can’t muster enthusiasm for anything – even things they once engaged in and enjoyed.

APDA https://www.apdaparkinson.org/article/apathy-and-parkinsons-disease/ Apathy is defined as a feeling of indifference or a general lack of interest or motivation in activities. People with PD may feel that they have lost their “get up and go”, and can’t muster enthusiasm for anything – even things they once engaged in and enjoyed. Apathy can be a very frustrating non-motor symptom of Parkinson’s disease (PD) not only for the person with PD but also for care partners, friends and family. Apathy can be a frustrating non-motor symptom of PD. Apathy can be accompanied by depression and/or cognitive decline, it can also mimic depression and cognitive decline, and it can also occur independently of these other non-motor symptoms. This can make apathy confusing to distinguish and identify. Discuss this and all other symptoms with your doctor as he/she may want to evaluate you for other non-motor symptoms and may want to check for some medical conditions as well. Although there are no medications approved for apathy, lifestyle modifications can help, including the establishment of a non-negotiable, regular routine. ==================== Parkinson Foundation https://www.parkinson.org/library/fact-sheets/apathy Apathy is defined as a lack of motivation. In PD, it shows up in three forms: • Cognitive. Loss of interest/curiosity in new things. • Emotional. A lack of passion or reaction to news or situations that normally would evoke an emotion. • Behavioral. Trouble initiating activity, a need for others to prompt one to complete tasks. Treatment The first thing a person with PD and his or her care partner should do upon experiencing apathy is to consult the movement disorder specialist to ensure that PD medications are working optimally. Download the fact sheet https://www.parkinson.org/sites/default/files/documents/apathy-and-parkinsons.pdf ==================== M.J. Fox https://www.michaeljfox.org/news/ask-md-apathy-and-parkinsons-disease Apathy can have wide-ranging effects. For the individual experiencing it, apathy may lead to less physical activity (which can worsen already impaired mobility) and fewer social interactions (which could lead to depressive symptoms). Apathy has also been shown to correlate with a poorer adherence to medication regimens and/or response to treatment (as after deep brain stimulation surgery, for example). The friends and family of someone with apathy are also impacted — relationships may be stressed as loved ones take on more caregiving efforts. People with apathy usually don’t realize there is a problem. Instead, friends and family notice behavior or personality changes and bring these to the doctor’s attention. It’s important to do so because the physician can do tests and have you fill out questionnaires to figure out if the symptoms are due to apathy, depression and/or another medical condition. If the diagnosis of apathy is confirmed, lifestyle adjustments may be recommended: Maintain a regular sleep and wake schedule. Create a schedule that incorporates physical, social and cognitive (memory and thinking) activities. List what you will do each day and at what time. Set personal goals. Start small, with objectives you are confident you can achieve. Exercise. Physical activity is probably the last thing you want to do when you’re tired and unmotivated. It sounds counterintuitive, but exercise is actually helpful for apathy. Medication options to treat apathy are, unfortunately, limited. Increasing dopamine replacement therapies (dopamine agonists and/or levodopa) is beneficial in some people but, of course, must be done carefully. Other drugs, including those used for dementia (such as rivastigmine, or Exelon) and depression (namely if the person is depressed) can be helpful in individual cases. All medications work best in conjunction with the above behavioral adjustments. ==================== Downloadable Documents - https://med.stanford.edu/parkinsons/symptoms-PD/apathy.html#downloadable Online Articles - https://med.stanford.edu/parkinsons/symptoms-PD/apathy.html#articles Podcasts & Webinars - https://med.stanford.edu/parkinsons/symptoms-PD/apathy.html#podcasts

Ask the MD: What's in Your Parkinson's Medicine Cabinet? MJ Fox vIdeo

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Medication

Wondering about Parkinson’s disease (PD) medication options, what they can and can’t do, their side effects and more? In this video, Rachel Dolhun, MD, DipABLM, movement disorder specialist, lifestyle medicine physician and senior vice president of medical communications at The Michael J. Fox Foundation (MJFF), shares what to know and ask about available and upcoming PD medications, wherever you are in your journey. 12 minutes

Brian Grant Foundation

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Trusted Organization

The Brian Grant Foundation provides proven tools to improve the well-being of people with Parkinson’s. BGF was established in 2010, following Brian’s diagnosis in 2008 at the age of 36. Though there is no cure for Parkinson’s, exercise, nutrition and a supportive community can help manage symptoms, maintain overall health and prevent other serious illnesses.

The Brian Grant Foundation provides proven tools to improve the well-being of people with Parkinson’s. BGF was established in 2010, following Brian’s diagnosis in 2008 at the age of 36. Though there is no cure for Parkinson’s, exercise, nutrition and a supportive community can help manage symptoms, maintain overall health and prevent other serious illnesses.

CAPTAIN community services

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Transportation, Finance, Housing, Nutrition

Care Links
Trained Care Links volunteers provide supportive services to persons 60+ in the towns of Ballston (including Burnt Hills), Charlton, Clifton Park, Halfmoon, Malta, the Village of Ballston Spa, and the city of Mechanicville. We help people live independently in their homes as long as possible, offering: friendly visiting, transportation, respite assistance, shopping and errands, light housekeeping and chores, support groups, telephone reassurance, information and referral, and more.

Click here for more information about Care Links, call 518-399-3262 or click here to contact us online.

Help for Seniors If you're in need of emergency assistance, please call us at 518-399-3262. Our senior support programs are listed below. Care Links Trained Care Links volunteers provide supportive services to persons 60+ in the towns of Ballston (including Burnt Hills), Charlton, Clifton Park, Halfmoon, Malta, the Village of Ballston Spa, and the city of Mechanicville. We help people live independently in their homes as long as possible, offering: friendly visiting, transportation, respite assistance, shopping and errands, light housekeeping and chores, support groups, telephone reassurance, information and referral, and more. Click here for more information about Care Links, call 518-399-3262 or click here to contact us online.

Care Partner resources

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Care Partners

Care Partner resources from various organizations

Care partner Resources Davis Phinney Foundation https://davisphinneyfoundation.org/resources/parkinsons-care-partner-resources/ The Parkinson’s Foundation Care Partner Program is designed with care partners in mind and is recommended for anyone caring for someone living with PD, including spouses, partners, children or friends. The Care Partner Program: Building a Care Partnership This Series of Online Courses for Family Care Partners are: Completely Free and available for anyone with an internet connection Self Paced – each can be completed in 1-2 hours in a single sitting or spread out over days, weeks or months Designed by the Care Partner Program Committee, made up of current and former Parkinson’s Care Partners Read more at https://www.parkinson.org/Summit APDA Resources for care partners https://www.apdaparkinson.org/resources-support/for-caregivers/

Caring.com

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Support, Care Partners

Caring.com has a support group for caregivers, family and friends of those with Parkinson’s disease. No subject is off-limits in this forum.

Caring.com has a support group for caregivers, family and friends of those with Parkinson’s disease. No subject is off-limits in this forum.

Catholic Charities

Albany County Services PH (518) 512-3577
Call or check website for services for other counties

Catholic Charities, recognizing human need at all stages of life, responds to all persons regardless of race, creed, or lifestyle, with special emphasis on the economically poor and the vulnerable. Catholic Charities serves and empowers persons in need, advocates for a just society, calls forth and collaborates with women and men of good will in fulfillment of its mission.

Checklist for the NEWLY DIAGNOSED - Davis Phinney Foundation

Download this checklist to find out what you can do every day, every week, every month and every year to live well with Parkinson’s.
When you are newly diagnosed with Parkinson’s, you may be filled with worry, fear, questions, and feelings of loss and sadness. In addition, you’ve probably heard advice from your medical team and loved ones about what you need to do to live well with it. And that can feel overwhelming. That’s why we created this Parkinson’s newly diagnosed checklist. We wanted to create a simple plan you can put into action quickly so you can live well with Parkinson’s now and for many years to come.

Clinical Trials.gov

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Trusted Organization, Research

Search for actively recruiting studies that you may be able to participate in or learn about new interventions/treatments that are being considered.

ClinicalTrials.gov is a Web-based resource that provides patients, their family members, health care professionals, researchers, and the public with easy access to information on publicly and privately supported clinical studies on a wide range of diseases and conditions. The Web site is maintained by the National Library of Medicine (NLM) at the National Institutes of Health (NIH)

Community Resource Finder

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Housing, Home Care, Care Partners

This searchable listing put together by Alzheimer’s Association and AARP, will help you get easy access to resources, community programs and services.

Alzheimer’s Association AARP Community Resource Finder is a database of dementia and aging-related resources powered by Carelike®. The online tool makes it easy for people living with Alzheimer’s and other dementias, family caregivers and those involved in making care-related decisions to find local programs and services. Community Resource Finder displays resources including, but not limited to: Alzheimer’s Association programs and events AARP programs and events Housing options Care at home Medical services Community services Read more of the FAQ here https://www.communityresourcefinder.org/Alz/FAQ

DBS and Me - Boston Scientific

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Treatment, DBS

If you are living with Parkinson’s Disease (PD), medication isn’t your only option. Learn about treatment options— like Deep Brain Stimulation (DBS) and find support and care partner resources.

Dance for PD - Dance by phone

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Exercise, Dance

Free within North America
Dance for PD’s Dance by Phone initiative invites people without internet access or digital technology to benefit from the experience of a dance class wherever they are and whenever they want a movement session, just by dialing a number on a telephone.
The system is easy to use and toll-free within North America. To access this resource, call 1-800-957-1046.

Call 1-800-957-1046 | Use your keypad When prompted, you may select the activity you’d like to do by entering an extension number from the menu: Activity menu #20 Introduction (please listen to this message the first time you use the system) #24 Rock, Paper, Scissors #21 Sun Salutation #25 Broadway number #22 Painting #26 Reverence #23 Hand and Foot dance At the end of each activity, you must press 0 to return to the main menu or another activity extension before the end of the recording to continue. If you do not press anything, the system will automatically disconnect you and end the call.

Davis Phinney Foundation

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Trusted Organization

WE HELP PEOPLE WITH PARKINSON’S LIVE WELL TODAY.
Since 2004, the Davis Phinney Foundation has brought to life some of the most important programs, research, content, and events for those affected by Parkinson’s. Our community includes people living with Parkinson’s, Parkinson’s care partners, families and friends of those living with Parkinson’s, physicians, and Parkinson’s allied health professionals.

WE HELP PEOPLE WITH PARKINSON’S LIVE WELL TODAY. Since 2004, the Davis Phinney Foundation has brought to life some of the most important programs, research, content, and events for those affected by Parkinson’s. Our community includes people living with Parkinson’s, Parkinson’s care partners, families and friends of those living with Parkinson’s, physicians, and Parkinson’s allied health professionals.

Davis Phinney Foundation - Parkinson's 101

material for newly diagnosed

Parkinson’s is a complex neurological disorder that can affect almost every part of the body, ranging from how you move to how you feel to how you think and process. Since Parkinson’s affects everyone differently, the specific ways you choose to live well will be unique and change over time. However, a positive attitude, staying engaged in your own health, consistently exercising, and making a commitment to act are steps everyone living with Parkinson’s can take to live well right now.

Drugs.com

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Medication, Trusted Organization

DRUGS A-Z, PILL IDENTIFIER, INTERACTION CHECKER, NEWS & ALERTS

Drugs.com is the most popular, comprehensive and up-to-date source of drug information online. Providing free, peer-reviewed, accurate and independent data on more than 24,000 prescription drugs, over-the-counter medicines & natural products.

Ending Parkinson's Disease: THE BOOK

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Advocate

Ending Parkinson’s Disease proposes a bold PACT to Prevent the disease, Advocate for protective policies, Care for patients, and Treat the condition with innovative therapies. The authors gather the expertise of clinicians, patients, and cutting-edge researchers to tell the full story of Parkinson’s and what we can do to end it. As we confront this coming wave of disease, this book is an indispensable guide for patients, families, clinicians, scientists, politicians, and activists.

Every Victory Counts Manual

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Support, Trusted Organization, PD101, Inspiration

First published in 2010, the Every Victory Counts® manual broke new ground as the only resource of its kind, devoted solely to the principle of proactive self-care and a holistic approach to managing Parkinson’s. In subsequent editions, it has gained international recognition as a superb and comprehensive resource for changing the way people live with Parkinson’s. Now in its sixth edition, the manual is the cornerstone of our new Every Victory Counts suite of resources, a robust collection of printed and digital manuals (including a new Every Victory Counts Manual for Care Partners) that embrace the Davis Phinney Foundation’s philosophy of taking action to improve your quality of life with Parkinson’s.

Essential information about Parkinson’s plus dozens of topics that are frequently overlooked but critical to helping you live well Insights from more than 50 Parkinson’s experts, including physicians, therapists, and scientists who share cutting edge research, strategies, and ideas for living well with Parkinson’s Advice and inspiration from dozens of people living well with Parkinson’s today In-depth information about exercise, nutrition, emotional health, medication, therapies, and more

Find an Movement Disorder Specialist (MDS) in your Area

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Medical Professionals

GoodRX

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Finance

Save up to 80% on prescriptions¹ Easily get FREE GoodRx coupons to use at popular pharmacies.

Hospital Safety Kits from parkinson.org/

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Advocate

Advocate for your best care with the hospital safety kit. Get the kit online or order it to be delivered to you.

Research has found that three out of four people with Parkinson’s disease (PD) do not receive medications on time when staying in the hospital. When this occurs two out of three will experience unnecessary complications. With more frequent hospital visits and a high sensitivity to the timing and dosing of PD medications, people with Parkinson’s face great risks in the hospital. At the Parkinson’s Foundation, it is our mission to help people with Parkinson’s disease live better lives, and that includes staying safe while in the hospital. Understand the risks associated with hospital stays. Have tools to play an active role in their care. Are prepared for a hospital visit, whether planned or unplanned. Have a plan to get the best possible care in the hospital. Three easy ways to get these life-saving resources:

Jewish Family Services

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Support, Care Partners, Nutrition

Jewish Family Services of Northeastern New York 184 Washington Ave. Ext. Albany, NY 12203

How We Help and Who We Help Jewish Family Services of Northeastern New York has been continuously providing a continuum of support, services and resources for individuals and families of all ages since 1854. JFS is proud to serve people of all backgrounds, while also having a unique ability and responsibility to meet the particular needs of the Jewish community. Our programs and services range from counseling to guidance for those aging in place to assistance for those facing food or financial insecurity – and so much more. JFS’s expert staff is available virtually, by telephone and in person. See a complete list of our services: JFS At-a-Glance

John O'Leary Inspirational speaker and author of on fire and in awe

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Inspiration

John O’Leary shares his expertise on overcoming adversity and how to live inspired with more than 50,000 people at more than 120 live events each year around the world. In 2006, he was inducted into the Energizer “Keep Going” Hall of Fame.

John’s professional focus as an international speaker began with the writing and release of his parents’ poignant book, Overwhelming Odds. Because of this book, John felt compelled to embrace his past, rise above his fears and share his message with others. He began speaking in 2005 to a total of eight organizations. Since then, he partnered with over 1,000+ groups, in 46 states and nine countries. The tremendous growth is the result of his commitment to his clients and to truly partnering with them to make each meeting, conference and retreat a life-changing experience for their associates.

LSVT BIG -Physical Therapy for Parkinson’s Disease

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Trusted Organization, Physical Therapy

SVT BIG trains people with Parkinson disease (PD) to use their body more normally.

LSVT Global

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Treatment, Trusted Organization

LSVT programs are evidence-based speech, physical or occupational therapies. LSVT stands for Lee Silverman Voice Treatment. Named for Mrs. Lee Silverman, a woman living with Parkinson’s disease (PD), it was developed by Dr. Lorraine Ramig and has been scientifically studied for over 25 years with support from the National Institute for Deafness and other Communication Disorders within the National Institutes of Health (NIH) and other funding organizations.

Today there are two distinct LSVT therapy programs: LSVT LOUD speech therapy improves communication in daily living; and LSVT BIG physical or occupational therapy improves mobility and movement used in everyday function. These are not general exercise programs. Instead, they are research-based treatment protocols designed specifically to address the motor, sensory and non-motor symptoms that many people with PD face. LSVT LOUD and LSVT BIG treatments can only be given by specially trained LSVT Certified Clinicians. With their guidance, people with PD will learn to translate skills built during treatment into better everyday communication, function and movement.

Locate an LSVT Certified Clinician

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Medical Professionals

LSVT programs are evidence-based speech, physical or occupational therapies. LSVT stands for Lee Silverman Voice Treatment. Named for Mrs. Lee Silverman, a woman living with Parkinson’s disease (PD), it was developed by Dr. Lorraine Ramig and has been scientifically studied for over 25 years with support from the National Institute for Deafness and other Communication Disorders within the National Institutes of Health (NIH) and other funding organizations.

Voice and Movement Physical Therapy program

Mayo Clinic PD 101 Overview

Overview, Symptoms, When to see a doctor, Causes, Risk factors, Complications, Prevention

Parkinson's disease can't be cured, but medicines can help control the symptoms, often dramatically. In some more advanced cases, surgery may be advised. PD101

Melvin Weinstein Parkinson’s Foundation

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Finance

The Melvin Weinstein Parkinson’s Foundation purchases equipment and supplies necessary to maintain a safe and healthy environment for Parkinson’s patients.

The Melvin Weinstein Parkinson’s Foundation purchases equipment and supplies necessary to maintain a safe and healthy environment for Parkinson’s patients. The Melvin Weinstein Parkinson’s Foundation has funded the cost of medications and health care equipment, supplies and services including shower chairs, ramps, electric wheelchairs and scooters, U-Step walkers and canes, computers, lift seats, elevated toilet seats, in-home care, car lifts, tracheotomy kits, speaker phones, tub transfer benches, adult diapers, grab bars for inside the home, and transportation to the doctor’s appointments. These simple provisions can have a profound impact on the day to day lives of people affected by Parkinson’s. If you have been diagnosed with Parkinson’s disease and would like to apply for assistance, please download and fill out the application here.. https://www.mwpf.org/

Metabolical: The Lure and the Lies of Processed Food, Nutrition, and Modern Medicine

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Nutrition

Michael J. Fox Introduction to Parkinson's PD 101

There is no simple way to deal with the life-changing event of a Parkinson’s diagnosis. The good news: Most people find acceptance and quality of life after the initial adjustment period.

Parkinson’s disease (PD) occurs when brain cells that make dopamine, a chemical that coordinates movement, stop working or die. Because PD can cause tremor, slowness, stiffness, and walking and balance problems, it is called a “movement disorder.” But constipation, depression, memory problems and other non-movement symptoms also can be part of Parkinson’s. PD is a lifelong and progressive disease, which means that symptoms slowly worsen over time. The experience of living with Parkinson's over the course of a lifetime is unique to each person. As symptoms and progression vary from person to person, neither you nor your doctor can predict which symptoms you will get, when you will get them or how severe they will be. Even though broad paths of similarity are observed among individuals with PD as the disease progresses, there is no guarantee you will experience what you see in others. Estimates suggest that Parkinson’s affects nearly 1 million people in the United States and more than 6 million people worldwide.

My Degeneration: A Journey Through Parkinson’s (Graphic Medicine)

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Inspiration, Humor, Book

How does one deal with a diagnosis of Parkinson’s disease at the age of forty-three? My Degeneration, by former Anchorage Daily News staff cartoonist Peter Dunlap-Shohl, answers the question with humor and passion, recounting the author’s attempt to come to grips with the “malicious whimsy” of this chronic, progressive, and disabling disease. This graphic novel tracks Dunlap-Shohl’s journey through depression, the worsening symptoms of the disease, the juggling of medications and their side effects, the impact on relations with family and community, and the raft of mental and physical changes wrought by the malady.

My Degeneration examines the current state of Parkinson’s care, including doctor/patient relations and the repercussions of a disease that, among other things, impairs movement, can rob patients of their ability to speak or write, degrades sufferers’ ability to deal with complexity, and interferes with the sense of balance. Readers learn what it’s like to undergo a dramatic, demanding, and audacious bit of high-tech brain surgery that can mysteriously restore much of a patient’s control over symptoms. But My Degeneration is more than a Parkinson’s memoir. Dunlap-Shohl gives the person newly diagnosed with Parkinson’s disease the information necessary to cope with it on a day-to-day basis. He chronicles the changes that life with the disease can bring to the way one sees the world and the way one is seen by the wider community. Dunlap-Shohl imparts a realistic basis for hope―hope not only to carry on, but to enjoy a decent quality of life.

Needy Meds

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Finance, Medication

Find help with the cost of medicine

NeedyMeds is an online information resource of programs that provide assistance to people who are unable to afford their medications and health care costs. All the information is free, easy to access and updated regularly. No registration is required and we don't request any personal information.

New Parkinson's Diagnosis - Davis Phinney podcast

If you suspect you have Parkinson’s, but you haven’t received an official diagnosis, you may be frustrated by the process and wondering what really goes into a diagnosis.

In either case, this podcast episode is for you. In this episode Kelsey Phinney speaks with Dr. Aaron Haug, a neurologist specializing in Parkinson’s at Blue Sky Neurology in Colorado about: The diagnostic process for Parkinson’s The two most important parts of a Parkinson’s diagnosis The difference between a Parkinson’s tremor and an essential tremor The symptom differentiation between those diagnosed when they’re young (YOPD) and those diagnosed at older ages How to reframe a Parkinson’s diagnoses and take control of your ability to live well with it NOTES The two most important parts of the diagnostic process in Parkinson’s are history and physical exam The difference between a Parkinson’s tremor and an essential tremor is that a Parkinson’s tremor is a resting tremor. Meaning, even at rest, the hand will shake Two-thirds of people with Parkinson’s have a resting tremor Ten million people in the US have essential tremor Rigidity in Parkinson’s is characterized by stiffness and inflexibility of the limbs, neck or trunk The test that can help with assessing a Parkinson’s diagnosis is called a DaTscan People who are diagnosed with Parkinson’s before age 50 (YOPD) tend to have more motor symptoms and not as many non-motor symptoms as those who receive the diagnosis later in life Out of the one million people in the US who have Parkinson’s, 15% are believed to be the result of a genetic mutation YOPD is more likely to be linked to a genetic cause than later onset Parkinson’s The earlier you get a diagnosis, the earlier you can begin doing something about it such as working with a specialist who will prescribe medications that will help you and beginning an exercise program that can help you lessen your symptoms and improve your quality of life It’s okay to grieve the loss of the expectations you had for your life, but it’s also very possible to live a long and full life

PD SELF -A program for Newly Diagnosed that Improves Quality of Life

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PD101, Care Partners

PD SELF is a national program for Parkinson’s patients who have been newly diagnosed within the last 3 years. This program provides patients with the motivation, confidence, skills and knowledge to improve their quality of life by introducing them to ways of better managing their disease as it progresses over time.

PD SELF is a national program for Parkinson’s patients who have been newly diagnosed within the last 3 years. This program provides patients with the motivation, confidence, skills and knowledge to improve their quality of life by introducing them to ways of better managing their disease as it progresses over time. Care partners are encouraged to participate and will be provided with educational tools to be a more effective care partner. Having a care partner is not a requirement https://davisphinneyfoundation.org/programs/pd-self/

Parkinson Foundation PD 101

Parkinson’s 101: We Answer Your Top Parkinson’s Questions

Parkinson's Disease Care NY

Tags

Medical Professionals

Using telemedicine, our team can provide care to patients across New York State.

Using telemedicine, our team can provide care to patients across New York State. As a patient in our Parkinson Disease Care New York Program (PDCNY), you will have access to a Parkinson’s specialist from the University of Rochester Medical Center in the comfort of your own home. All you need is internet access and a device that is capable of accessing the internet, such as a laptop, tablet, or smartphone. https://www.pdcny.org

Parkinson's Foundation Helpline: 1-800-4PD-INFO (473-4636)

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Trusted Organization, Support, Housing

Call the Parkinson's Foundation Helpline 1-800-4PD-INFO (1-800-473-4636) for answers to your Parkinson’s disease (PD) questions. Staffed by nurses, social workers and health educators, the Parkinson's Foundation Helpline is here to support you in any possible way, including:

Current disease information
Medical issues including symptoms and treatments
Health and social care
Referrals to health professionals and community resources for local support
The Parkinson's Foundation Helpline is open Monday through Friday from 9 a.m. to 7 p.m. ET. We can assist you in either English or Spanish. You can also email us with a question at any time: Helpline@Parkinson.org or interact with us and the Parkinson's community at large on PD Conversations.

Staffed by nurses, social workers and health educators, the Parkinson's Foundation Helpline is here to support you in any possible way, including: Current disease information Medical issues including symptoms and treatments Health and social care Emotional support Referrals to health professionals and community resources for local support The Parkinson's Foundation Helpline is open Monday through Friday from 9 a.m. to 7 p.m. ET. We can assist you in either English or Spanish

Parkinsons Foundation

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Trusted Organization

Understanding Parkinson’s
Living with Parkinson’s
Resources & Support
Advancing Research

Better Lives. Together.

Power for Parkinsons

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Exercise

We are a non-profit organization offering FREE Parkinson's fitness classes

Primer for newly diagnosed - Davis Phinney Foundation

Hearing the words, “You have Parkinson’s,” is life changing. For some, a Parkinson’s diagnosis may mark the end of a long and frustrating search to explain a collection of different and seemingly disconnected symptoms. For others, a Parkinson’s diagnosis is a complete shock, filled with feelings of disbelief and despair. For everyone, a Parkinson’s diagnosis brings a new and unexpected journey.

Rob Liebreich who is the President and CEO of the Goodwin Living Institute gives a presentation of their free Stronger Memory program that has been clinically shown to improve cognition and short term memory.

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Memory

Slim Shaky - presentef WPC 2023

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Inspiration, Humor

Social Security Disability Insurance - APDA

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Finance, Disability

Social Security Disability Insurance (SSDI) is a government disability benefit program that is administered by the Social Security Administration (SSA). SSDI benefits are paid on a monthly basis to disabled workers who qualify under the SSA’s rules. SSDI covers total disability, and does not cover partial disability or short-term disability.

Am I covered by SSDI? Not everyone is covered by SSDI. In addition to meeting the SSA’s definition of disability (discussed below), you must have worked in a job that was covered by Social Security and have accrued enough work credits. Click here to visit SSA.gov to read more about SSDI qualification requirements.

Study Title: LEOPARD-PD: Longitudinal Endpoint Optimization to Provide an Assessment of Relevant Drugs in Parkinson’s Disease

Tags

Research

This form describes a research study that is being conducted by Dr. Chad Heatwole, MD, MS-CI from the University of Rochester Center for Health + Technology (CHeT). The purpose of this study is to determine the ability of the Parkinson’s Disease-Health Index (PD-HI) survey to measure patient-relevant changes in Parkinson’s disease (PD) symptoms over time. The PD-HI survey was designed to assess the quality-of-life of patients with PD. This study will further describe how PD symptoms progress over the course of two years. If you decide to take part in this study, you will be asked to complete an online survey assessment five times over the course of two years. These assessments will include demographics questions and various health-related surveys that will ask about the PD symptoms that you experience. The assessments will be taken at baseline, 6 months, 12 months, 18 months, and 24 months. Each assessment may take up to 40 minutes to complete and will be sent to you via email.

Synapticure

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Medical Professionals

Connect with a Parkinson’s Neurologist
Quickly accessing Parkinson’s specialists is challenging—doing so from your home is even more difficult. Using telehealth, Synapticure’s movement disorder team is here to ease the burden.

https://www.synapticure.com/parkinsons-disease

Tai chi may slow Parkinson's symptoms for years, study finds

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Exercise

Tai chi may help slow down the symptoms of Parkinson's disease for several years, a Chinese study suggests.

Those who practised the martial art twice a week had fewer complications and better quality of life than those who didn't, the researchers say. Parkinson's is a progressive brain disease which leads to tremors and slow movement, and there is no cure. Experts say the findings back up previous studies on the benefits of exercise for those with Parkinson's.

The Assistance Fund

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Finance

Millions of people don’t have access to the medicines they need because they can’t afford them. We believe nothing should stand between you and your treatment.

Parkinsons Disease ACCEPTING WAITLIST PATIENTS TAF is currently accepting requests to join the enrollment waitlist for this program. Waitlists are administered on a calendar-year basis. At the end of each calendar year, waitlist applications expire. Patients still seeking assistance must join waitlists for the subsequent calendar year.

The BITTER TRUTH About Sugar & How It Causes INFLAMMATION

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Nutrition

The Brain That Changes Itself - Documentary

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Neurology

The Brain's Way of Healing: Remarkable Discoveries and Recoveries from the Frontiers of Neuroplasticity

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Treatment

The NEUPRO Patch

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Treatment, Medication

NEUPRO® (rotigotine transdermal system) is a prescription medicine used to treat Parkinson’s disease.

https://www.neupro.com/parkinsons-disease/rotigotine-dopamine-agonist

The PAN Foundation

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Finance

Everyone deserves equitable access to affordable healthcare, regardless of who they are. The PAN Foundation and our Board of Directors recognize the importance of ensuring that health equity is at the forefront of our mission and programs. We acknowledge that systemic inequities have prevented historically marginalized and underserved populations from accessing affordable and quality healthcare. Together, we must enact change. Providing financial assistance to patients who need it the most. https://www.panfoundation.org/disease-funds/parkinsons-disease/

The Promise of Lithium: How an Over-the-Counter Supplement May Prevent and Slow Alzheimer's and Parkinson's Disease

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Treatment

The Surrey Neuroplasticity Clinic (PoNS Device)

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Treatment

Umbrella of the Capital District

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Finance, Support

Umbrella is a membership organization. For an annual fee, Umbrella members have access to a screened, skilled group of handy persons who provide a variety of services, including home repairs, housekeeping, lawn and gardening and shopping.

Umbrella is a membership organization. For an annual fee, Umbrella members have access to a screened, skilled group of handy persons who provide a variety of services, including home repairs, housekeeping, lawn and gardening and shopping. https://theumbrella.org/

WPC Master classes - short videos 2023

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Research

The World Parkinson Congress (WPC) 2023 Master Classes are short talks given by experts on topics they presented at WPC 2023. The classes cover a wide range of important and current topics in Parkinson's

WebMD

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Trusted Organization

As a leader in digital health publishing for more than 25 years, WebMD strives to maintain the most comprehensive and reliable source of health and medical information on the internet. We recognize the responsibility that comes along with being the most well-known and trusted health information platform

Wellness Wednesday: Gene & Cell-Based Therapies in Parkinson's Disease

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Treatment

While still in the developmental stage, genetic and cell-based therapies hold some promise for people with Parkinson’s disease (PD). This webinar will review what those considering gene-based or cell-based therapy may expect in terms of symptom management and disease progression.

Register for future Expert Briefing Webinars: https://secure3.convio.net/prkorg/sit... Helpful resources: - Parkinson’s Foundation Helpline: 1-800-4PD-INFO (1-800-473-4636) | Helpline@Parkinson.org | https://www.parkinson.org/resources-s... - Resources for those who are new to Parkinson’s disease: www.parkinson.org/living-with-parkinsons/new-to-parkinsons - Aware in Care hospital safety kit: https://www.parkinson.org/resources-s... - PD Health @ Home programs: https://www.parkinson.org/resources-s... - Información en español: https://www.parkinson.org/espanol Find us on social media! @ParkinsonDotOrg Facebook: https://www.facebook.com/parkinsondotorg Facebook en Español: https://www.facebook.com/ParkinsonEsp... Instagram: https://www.instagram.com/parkinsondo... Twitter: https://twitter.com/ParkinsonDotOrg LinkedIn: https://www.linkedin.com/company/park... TikTok: https://www.tiktok.com/@parkinsondotorg What is the Parkinson’s Foundation? The Parkinson’s Foundation makes life better for people with Parkinson’s disease (PD) by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community. Learn more on our website: https://www.parkinson.org/

When Life Gives You Parkinson's Podcast with Larry Gifford

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Podcast

Larry Gifford has Parkinson’s disease, and he wants to talk about it. When Life Gives You Parkinson’s chronicles Larry’s journey following diagnosis at age 45, but he knows he’s only part of the story. The podcast gives voice to the fascinating people that make up the Parkinson’s community and beyond — his family, his fellow people with Parkinson’s, care partners, advocates, researchers and healthcare providers.

World Parkinson' Congress

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Research

The World Parkinson Coalition®provides the only international forum on Parkinson's disease that invites all stakeholders to learn about the latest scientific discoveries, medical practices, and care initiatives that improve the lives of people living with Parkinson's disease.

The World Parkinson Coalition®provides the only international forum on Parkinson's disease that invites all stakeholders to learn about the latest scientific discoveries, medical practices, and care initiatives that improve the lives of people living with Parkinson's disease. By bringing the full Parkinson's community together, including people living with Parkinson's, we hope to expedite the discovery of new treatments for this devastating disease until a cure is found.
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