Resource Library
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Albany County Department for Aging
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Trusted Organization, Nutrition, Support
Older residents who are hom-bound and in need of day-to-day assistance, including home delivered meals, should contact Albany County- NY Connects at (518) 447-7177
Albany Guardian Society
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Housing, Transportation, Nutrition
Senior Housing Directory, Senior Transportation Directory
Albany Medical Center - Occupational and Physical Therapy Center
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Physical Therapy, Medical Professionals
99 Delaware Ave. in Delmar, NY
(518) 262-9700
Alzheimer’s Association, caregiver and referral services
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Memory, Care Partners
Serving needs of those dealing with Parkinson’s and other conditions, not restricted to Alzheimer’s
The Alzheimer’s Association 24/7 Helpline (800.272.3900) is available around the clock, 365 days a year. Through this free service, specialists and master’s-level clinicians offer confidential support and information to people living with dementia, caregivers, families and the public.
American Parkinson Disease Association (APDA)
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Trusted Organization
The American Parkinson Disease Association (APDA) is the largest grassroots network dedicated to fighting Parkinson’s disease (PD) and works tirelessly to help the approximately one million with PD in the United States live life to the fullest in the face of this chronic, neurological disorder.
Apathy and PD
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Symptoms
One of the most challenging and puzzling non-motor symptoms of Parkinson’s disease (PD) is apathy. Apathy is defined as a feeling of indifference or a general lack of interest or motivation in activities. People with PD may feel that they have lost their “get up and go”, and can’t muster enthusiasm for anything – even things they once engaged in and enjoyed.
Brian Grant Foundation
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Trusted Organization
The Brian Grant Foundation provides proven tools to improve the well-being of people with Parkinson’s. BGF was established in 2010, following Brian’s diagnosis in 2008 at the age of 36. Though there is no cure for Parkinson’s, exercise, nutrition and a supportive community can help manage symptoms, maintain overall health and prevent other serious illnesses.
CAPTAIN community servicces
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Transportation, Finance, Housing, Nutrition
Care Links
Trained Care Links volunteers provide supportive services to persons 60+ in the towns of Ballston (including Burnt Hills), Charlton, Clifton Park, Halfmoon, Malta, the Village of Ballston Spa, and the city of Mechanicville. We help people live independently in their homes as long as possible, offering: friendly visiting, transportation, respite assistance, shopping and errands, light housekeeping and chores, support groups, telephone reassurance, information and referral, and more.
Click here for more information about Care Links, call 518-399-3262 or click here to contact us online.
Care Partner resources
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Care Partners
Care Partner resources from various organizations
Caring.com
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Support, Care Partners
Caring.com has a support group for caregivers, family and friends of those with Parkinson’s disease. No subject is off-limits in this forum.
Catholic Charities
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Albany County Services PH (518) 512-3577
Call or check website for services for other counties
Checklist for the NEWLY DIAGNOSED - Davis Phinney Foundation
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PD101
Download this checklist to find out what you can do every day, every week, every month and every year to live well with Parkinson’s.
When you are newly diagnosed with Parkinson’s, you may be filled with worry, fear, questions, and feelings of loss and sadness. In addition, you’ve probably heard advice from your medical team and loved ones about what you need to do to live well with it. And that can feel overwhelming. That’s why we created this Parkinson’s newly diagnosed checklist. We wanted to create a simple plan you can put into action quickly so you can live well with Parkinson’s now and for many years to come.
Clinical Trials.gov
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Trusted Organization, Research
Search for actively recruiting studies that you may be able to participate in or learn about new interventions/treatments that are being considered.
Community Resource Finder
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Housing, Home Care, Care Partners
This searchable listing put together by Alzheimer’s Association and AARP, will help you get easy access to resources, community programs and services.
Davis Phinney Foundation
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Trusted Organization
WE HELP PEOPLE WITH PARKINSON’S LIVE WELL TODAY.
Since 2004, the Davis Phinney Foundation has brought to life some of the most important programs, research, content, and events for those affected by Parkinson’s. Our community includes people living with Parkinson’s, Parkinson’s care partners, families and friends of those living with Parkinson’s, physicians, and Parkinson’s allied health professionals.
Davis Phinney Foundation - Parkinson's 101
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PD101
material for newly diagnosed
Drugs.com
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Medication, Trusted Organization
DRUGS A-Z, PILL IDENTIFIER, INTERACTION CHECKER, NEWS & ALERTS
Every Victory Counts Manual
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Support, Trusted Organization, PD101, Inspiration
First published in 2010, the Every Victory Counts® manual broke new ground as the only resource of its kind, devoted solely to the principle of proactive self-care and a holistic approach to managing Parkinson’s. In subsequent editions, it has gained international recognition as a superb and comprehensive resource for changing the way people live with Parkinson’s. Now in its sixth edition, the manual is the cornerstone of our new Every Victory Counts suite of resources, a robust collection of printed and digital manuals (including a new Every Victory Counts Manual for Care Partners) that embrace the Davis Phinney Foundation’s philosophy of taking action to improve your quality of life with Parkinson’s.
Find an Movement Disorder Specialist (MDS) in your Area
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Medical Professionals
Jewish Family Services
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Support, Care Partners, Nutrition
Jewish Family Services of Northeastern New York 184 Washington Ave. Ext. Albany, NY 12203
John O'Leary Inspirational speaker and author of on fire and in awe
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Inspiration
John O’Leary shares his expertise on overcoming adversity and how to live inspired with more than 50,000 people at more than 120 live events each year around the world. In 2006, he was inducted into the Energizer “Keep Going” Hall of Fame.
LSVT BIG -Physical Therapy for Parkinson’s Disease
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Trusted Organization, Physical Therapy
SVT BIG trains people with Parkinson disease (PD) to use their body more normally.
LSVT Global
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Treatment, Trusted Organization
LSVT programs are evidence-based speech, physical or occupational therapies. LSVT stands for Lee Silverman Voice Treatment. Named for Mrs. Lee Silverman, a woman living with Parkinson’s disease (PD), it was developed by Dr. Lorraine Ramig and has been scientifically studied for over 25 years with support from the National Institute for Deafness and other Communication Disorders within the National Institutes of Health (NIH) and other funding organizations.
Locate an LSVT Certified Clinician
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Medical Professionals
LSVT programs are evidence-based speech, physical or occupational therapies. LSVT stands for Lee Silverman Voice Treatment. Named for Mrs. Lee Silverman, a woman living with Parkinson’s disease (PD), it was developed by Dr. Lorraine Ramig and has been scientifically studied for over 25 years with support from the National Institute for Deafness and other Communication Disorders within the National Institutes of Health (NIH) and other funding organizations.
Medline plus
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Research
Medline plus Health Information (Clinical trials, nutrition, research, and treatment)
Melvin Weinstein Parkinson’s Foundation
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Finance
The Melvin Weinstein Parkinson’s Foundation purchases equipment and supplies necessary to maintain a safe and healthy environment for Parkinson’s patients.
Metabolical: The Lure and the Lies of Processed Food, Nutrition, and Modern Medicine
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Nutrition
Michael J. Fox Introduction to Parkinson's PD 101
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PD101
There is no simple way to deal with the life-changing event of a Parkinson’s diagnosis. The good news: Most people find acceptance and quality of life after the initial adjustment period.
My Degeneration: A Journey Through Parkinson’s (Graphic Medicine)
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Inspiration, Humor, Book
How does one deal with a diagnosis of Parkinson’s disease at the age of forty-three? My Degeneration, by former Anchorage Daily News staff cartoonist Peter Dunlap-Shohl, answers the question with humor and passion, recounting the author’s attempt to come to grips with the “malicious whimsy” of this chronic, progressive, and disabling disease. This graphic novel tracks Dunlap-Shohl’s journey through depression, the worsening symptoms of the disease, the juggling of medications and their side effects, the impact on relations with family and community, and the raft of mental and physical changes wrought by the malady.
New Parkinson's Diagnosis - Davis Phinney podcast
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PD101
If you suspect you have Parkinson’s, but you haven’t received an official diagnosis, you may be frustrated by the process and wondering what really goes into a diagnosis.
PD SELF -A program for Newly Diagnosed that Improves Quality of Life
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PD101, Care Partners
PD SELF is a national program for Parkinson’s patients who have been newly diagnosed within the last 3 years. This program provides patients with the motivation, confidence, skills and knowledge to improve their quality of life by introducing them to ways of better managing their disease as it progresses over time.
Parkinson Foundation PD 101
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Parkinson’s 101: We Answer Your Top Parkinson’s Questions
Parkinson's Disease Care NY
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Medical Professionals
Using telemedicine, our team can provide care to patients across New York State.
Parkinson's Foundation Helpline: 1-800-4PD-INFO (473-4636)
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Trusted Organization, Support, Housing
Call the Parkinson's Foundation Helpline 1-800-4PD-INFO (1-800-473-4636) for answers to your Parkinson’s disease (PD) questions. Staffed by nurses, social workers and health educators, the Parkinson's Foundation Helpline is here to support you in any possible way, including:
Current disease information
Medical issues including symptoms and treatments
Health and social care
Referrals to health professionals and community resources for local support
The Parkinson's Foundation Helpline is open Monday through Friday from 9 a.m. to 7 p.m. ET. We can assist you in either English or Spanish. You can also email us with a question at any time: Helpline@Parkinson.org or interact with us and the Parkinson's community at large on PD Conversations.
Parkinsons Foundation
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Trusted Organization
Understanding Parkinson’s
Living with Parkinson’s
Resources & Support
Advancing Research
Primer for newly diagnosed - Davis Phinney Foundation
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PD101
Hearing the words, “You have Parkinson’s,” is life changing. For some, a Parkinson’s diagnosis may mark the end of a long and frustrating search to explain a collection of different and seemingly disconnected symptoms. For others, a Parkinson’s diagnosis is a complete shock, filled with feelings of disbelief and despair. For everyone, a Parkinson’s diagnosis brings a new and unexpected journey.
Rob Liebreich who is the President and CEO of the Goodwin Living Institute gives a presentation of their free Stronger Memory program that has been clinically shown to improve cognition and short term memory.
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Memory
Study Title: LEOPARD-PD: Longitudinal Endpoint Optimization to Provide an Assessment of Relevant Drugs in Parkinson’s Disease
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Research
Synapticure
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Medical Professionals
Connect with a Parkinson’s Neurologist
Quickly accessing Parkinson’s specialists is challenging—doing so from your home is even more difficult. Using telehealth, Synapticure’s movement disorder team is here to ease the burden.
The Assistance Fund
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Finance
Millions of people don’t have access to the medicines they need because they can’t afford them. We believe nothing should stand between you and your treatment.
The BITTER TRUTH About Sugar & How It Causes INFLAMMATION
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Nutrition
The Brain's Way of Healing: Remarkable Discoveries and Recoveries from the Frontiers of Neuroplasticity
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Treatment
The NEUPRO Patch
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Treatment, Medication
NEUPRO® (rotigotine transdermal system) is a prescription medicine used to treat Parkinson’s disease.
The Promise of Lithium: How an Over-the-Counter Supplement May Prevent and Slow Alzheimer's and Parkinson's Disease
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Treatment
Trichloroethylene: An Invisible Cause of Parkinson’s Disease
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Research
Umbrella of the Capital District
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Finance, Support
Umbrella is a membership organization. For an annual fee, Umbrella members have access to a screened, skilled group of handy persons who provide a variety of services, including home repairs, housekeeping, lawn and gardening and shopping.
Wellness Wednesday: Gene & Cell-Based Therapies in Parkinson's Disease
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Treatment
While still in the developmental stage, genetic and cell-based therapies hold some promise for people with Parkinson’s disease (PD). This webinar will review what those considering gene-based or cell-based therapy may expect in terms of symptom management and disease progression.
When Life Gives You Parkinson's Podcast with Larry Gifford
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Podcast
World Parkinson' Congress
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Research
The World Parkinson Coalition®provides the only international forum on Parkinson's disease that invites all stakeholders to learn about the latest scientific discoveries, medical practices, and care initiatives that improve the lives of people living with Parkinson's disease.