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Fatigue and Parkinson's
Fatigue is a common non-motor symptom of Parkinson's disease. But what do we do about it? Let's find out. How to fight fatigue Pace yourself. This sounds easy and like common sense, but pacing can be really hard. On days where you are more fatigued than others, try to do 50-75% of what you think you could do. If you leave a little gas left in the tank and take a break, you will be able to keep moving throughout the entire day Exercise. Exercise for fatigue? Yes! Slowly buildi
Stephanie Soto
Jun 81 min read


Updated Every Victory Counts Manual
The 7th edition of the Every Victory Counts manual is now here! The Davis Phinney Foundation updated their Every Victory Counts manual - a free resource for people with Parkinson’s disease and their care partner. The manual contains information around the disease, medical and non-medical management, and perspectives from real people living with PD. This update has a free downloadable option, but you can request a free physical copy of the manual itself. Topics from the manua
Stephanie Soto
May 311 min read


Vermont Passes Legislation to Ban Paraquat!
On May 13th, Vermont became the first state in the United States to pass a bipartisan legislation to ban paraquat! What happens next? The bill will be delivered to Governor Phil Scott. Governor Scott has 10 days once he receives it to sign it into law. “I’m grateful to the patients, advocates, lawmakers and scientists who stepped up to protect Vermonters from paraquat,” said Michael J. Fox. “Now it’s time for other states — and Washington — to do the same.” New York, New Jer
Stephanie Soto
May 251 min read


New Parkinson's Intimacy Kit
The American Parkinson Disease Association (APDA) created a new intimacy kit and card game to help people with PD and their partners with physical and emotional intimacy challenges. Watch the video below to learn more about the intimacy kit. The ParkinSexTM kit includes stimulating items and a book on how to put them into practice. Together, they specifically address the physical and emotional needs of people with Parkinson’s. “There was a lack of useful resources to help peo
Stephanie Soto
May 171 min read


An on-demand, effective therapy for tremor relief
The FDA has approved the new Cala kIQ Plus system - a wearable neurostimulation device aimed to help control hand tremors in PD. There was a previous device made by Cala, but this is a new and improved system! The device is meant to be work like a wristwatch. It delivers electrical stimulation to the nerves in the arm to stimulate the brain. The new system adds more ways to personalize treatment in attempts to optimize tremor control. Cala's system is based on similar princip
Stephanie Soto
May 93 min read


New Trial: Tavapadon Helps Delay Start of Levodopa
Abbvie has a new experimental oral drug called tavapadon. Phase 3 of the trial has just been completed and the results are exciting. Levodopa is the gold standard medication for Parkinson's Disease. However, most people end up needing to gradually increase their dosage. This can lead to an increased risk of side effects. This sometimes also makes people delay or avoid taking levodopa, which can mean a lower quality of life. The American Academy of Neurology had an annual meet
Stephanie Soto
Apr 252 min read


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